In February 2009, Amanda Kelman-Miller gave birth to her second child, Graydon Miller. However, minutes after Graydon was born, it became clear that he had some serious health concerns. At 21 days old, he was diagnosed with Ohtahara Syndrome, a condition that results in intractable epilepsy. Tragically, Graydon passed away very shortly after.
Amanda with husband Simon, daughter Henley and baby Graydon.
In memory of her son, Amanda has participated in the Scotiabank Toronto Waterfront Marathon. Since 2010, the funds raised from Team Graydon have been supporting The Max and Beatrice Wolfe Children’s Centre and the Dr. Jay Children’s Grief Program at Mount Sinai Hospital. The Max and Bea Centre and the Dr. Jay Program provide grief counselling to children who have a brother, sister or parent who is terminally ill or has passed away. Amanda’s daughter, Henley, was 3.5 years old when Graydon passed away, and the support the Centre provided for Henley, and the help and guidance provided to Amanda and her husband, Simon, was extraordinary.
The Centre has a number of innovative programs, services and academic ventures that have garnered local, national and international interest and recognition. They provide consultation and education sessions for health professionals, teachers and boards of education to help provide support to children who have been affected by the death of a family member. The Max and Bea Centre is the only specialized centre in Ontario that offers medical and counselling support for dying children and their families in their home at no cost to the families. The Centre is funded entirely through private donations.
On October 14th, 2012, Team Graydon will participate in the Scotiabank Marathon for the third time, again in support of the Dr. Jay Children’s Grief Program and the Max and Beatrice Wolfe Children’s Centre at Mount Sinai. This year’s team has already raised over $70,000.00 to support children dealing with the death of a sibling or a parent. Please help support their efforts!
Click here to support Team Graydon today!
To learn more about the Max and Beatrice Wolfe Children’s Centre and the Dr. Jay Children’s Grief Program at Mount Sinai Hospital, click here.